Made it through the day at work today! I feel about the same as yesterday but was able to get through it and looking forward to the weekend.
I really cant wait to visit my doctors next week and figure out where I am at. If this is how I am going to feel until I get treatment I am not going to wait. This is no way to live. I slept from 4:30 to 6 pm again today when I got home from work.
Ready to go to bed now (8:37 Friday Night)... Party Guy!!!
More again later. I will post my levels when I get them on Thursday.
Friday, March 28, 2008
Thursday, March 27, 2008
Late Update Again
Another late post!! Over the last two days I have been on a downward slide. My energy is about zero and I am not eating very well....
I feel like the flu is coming back. No fever thank goodness.
Yesterday afternoon at work I had a near meltdown! Believe it or not I started crying. I went into the plant and hid until I felt better. I didn't talk to anyone or take calls the rest of the day. I went to bed at 8:30. At least I slept through the night.
I am so glad I going to the doctors next week. A consultation on Tuesday and my current Dr. on Thursday.
Today I could hardly get through the day. I left at 2:00. When I got home I slept from 3 to 6pm.
Now the weird part about all this is when I woke up this morning and looked at myself in the mirror, I had broken blood vessels all around the outside of both my eyes. I about crapped my pants. They are going away and don't hurt.
The rest of my face is just getting uglier and uglier. I have not read anything that says your complexion goes to nuts with this. However, my seems to be heading in that direction.
My platelets must be going down. Anyway, I hope I start feeling better soon.
Well, I am not doing a good job at explaining myself. Sorry,I am way out sync and just feel CRAPPY!!!
Off to bed!!
Happy B-Day to my number one oldest Nephew!!
I feel like the flu is coming back. No fever thank goodness.
Yesterday afternoon at work I had a near meltdown! Believe it or not I started crying. I went into the plant and hid until I felt better. I didn't talk to anyone or take calls the rest of the day. I went to bed at 8:30. At least I slept through the night.
I am so glad I going to the doctors next week. A consultation on Tuesday and my current Dr. on Thursday.
Today I could hardly get through the day. I left at 2:00. When I got home I slept from 3 to 6pm.
Now the weird part about all this is when I woke up this morning and looked at myself in the mirror, I had broken blood vessels all around the outside of both my eyes. I about crapped my pants. They are going away and don't hurt.
(MOM DON'T WORRY!!)
The rest of my face is just getting uglier and uglier. I have not read anything that says your complexion goes to nuts with this. However, my seems to be heading in that direction.
My platelets must be going down. Anyway, I hope I start feeling better soon.
Well, I am not doing a good job at explaining myself. Sorry,I am way out sync and just feel CRAPPY!!!
Off to bed!!
Happy B-Day to my number one oldest Nephew!!
Monday, March 24, 2008
Sunday, March 23, 2008
Happy Easter!!
I wanted to say Happy Easter to all my nieces and nephews!! I hope you had fun hunting for eggs!! The Easter Bunny left money in the eggs this year for the boys!!
Not much to report, thank goodness!! Still feeling great. Did a lot yesterday and still only took a little nap.
Looking forward to the first week in April when I meet with my doctors and see where I stand.
Getting ready for church so got to go!!
Talk to you later.
Not much to report, thank goodness!! Still feeling great. Did a lot yesterday and still only took a little nap.
Looking forward to the first week in April when I meet with my doctors and see where I stand.
Getting ready for church so got to go!!
Talk to you later.
Friday, March 21, 2008
Finally (Its about time)
Sorry for the late update!! I have been having (challenges) posting this week!! After Monday I continued to be somewhat depressed. It convinced me to take control and get all the questions that have been swimming around in my head answered.
So I called up to OHSU and found a Doc who has dealt with HCL for a number of years. I have a consult with him on April 1st. I then called my doctor and moved my appointment to April 3rd.
This way I can get a second opinion as it relates to my treatment. I am concerned about When to treat and what to use.
The standard 2 chemo drugs work but I am worried about side effects and what it will do to my immune system. If there is an alternatives I want to know.. Also if I can hold off treatment, fine but I will not be in a position to ruin Cams once in a life time trip because of me!!
HCL allows you to plan and I will take full advantage of it.
By the way, I feel great today! It is the best I have felt in about 6 weeks. Not sure why and quite frankly, I don't care.
We went out tonight with some friends. Yes its only 9pm but for me just getting out for an hour or two and actually talking and laughing its a plus!!!
I really cant wait to get all this behind me and feel this way all the time! My wife deserves a fun person not a 90 year old fuddy duddy!!
I promise to not miss a whole week again!!!
Happy Easter!!!
So I called up to OHSU and found a Doc who has dealt with HCL for a number of years. I have a consult with him on April 1st. I then called my doctor and moved my appointment to April 3rd.
This way I can get a second opinion as it relates to my treatment. I am concerned about When to treat and what to use.
The standard 2 chemo drugs work but I am worried about side effects and what it will do to my immune system. If there is an alternatives I want to know.. Also if I can hold off treatment, fine but I will not be in a position to ruin Cams once in a life time trip because of me!!
HCL allows you to plan and I will take full advantage of it.
By the way, I feel great today! It is the best I have felt in about 6 weeks. Not sure why and quite frankly, I don't care.
We went out tonight with some friends. Yes its only 9pm but for me just getting out for an hour or two and actually talking and laughing its a plus!!!
I really cant wait to get all this behind me and feel this way all the time! My wife deserves a fun person not a 90 year old fuddy duddy!!
I promise to not miss a whole week again!!!
Happy Easter!!!
Monday, March 17, 2008
Just Another Monday
It has been somewhat of tough day today. I am run down today and a little depressed. I have been sharing my vitals with others on a message board and it seems I am worse off than I thought.
It was pointed out that I could be within a month or less from needing Chemo. It was indicated that some were treated with levels the same as mine.
I am in no hurry to start Chemo and I am not sure if I should wait until my next appointment or push the issue. To be honest I am scared to death!! I am sure I will be fine but not knowing what it will do to me is scary. The odd are good I will be fine but odds have not been in my favor lately.
My biggest concern is making it to Florida the end of June. I don't want to miss it and I certainly cant go right after chemo or with a very low and vulnerable immune system.
Well I guess I will sleep on it.. Which seems to be the thing I do the best.
Bye for today!
It was pointed out that I could be within a month or less from needing Chemo. It was indicated that some were treated with levels the same as mine.
I am in no hurry to start Chemo and I am not sure if I should wait until my next appointment or push the issue. To be honest I am scared to death!! I am sure I will be fine but not knowing what it will do to me is scary. The odd are good I will be fine but odds have not been in my favor lately.
My biggest concern is making it to Florida the end of June. I don't want to miss it and I certainly cant go right after chemo or with a very low and vulnerable immune system.
Well I guess I will sleep on it.. Which seems to be the thing I do the best.
Bye for today!
Sunday, March 16, 2008
ANC LEVELS
I finally got some great info on how to figure out my Absolute Neutrophil Count:
Multiply WBC Count by the percentage of WBC's that represent the Neutrophils
Example:
Last CBC:
WBC- 3.5
Segs- 16%
Lympys 54%
Monos-29%
eos- 1%
hgb-14
hct-40
mcv-93
rdw-13
platelets-117
WBC-3.5 or 3500 X neuts or segs(Mature Neutrophils) 16% (.16)=560 Neutrophils
Low Neutrophils= 1,000
Extremely low= 500
Risk Factors include high risk of infection due compromised immune system.
I am going to talk to my doctor tomorrow and see if I should worry. The biggest issue is everyone at work is getting that bad flu and I do not want to end up sick again!! I also emailed a Hematologist in San Diego who is on an HCL board I have been visiting.
I also going to contact another Hematology group. If I am going to need Chemo and my WBC's are this low I want to get this over with so I can go to Florida healthy and not worry about getting sick.
Don't feel sick today, just a little run down.
Talk to you later.
Multiply WBC Count by the percentage of WBC's that represent the Neutrophils
Example:
Last CBC:
WBC- 3.5
Segs- 16%
Lympys 54%
Monos-29%
eos- 1%
hgb-14
hct-40
mcv-93
rdw-13
platelets-117
WBC-3.5 or 3500 X neuts or segs(Mature Neutrophils) 16% (.16)=560 Neutrophils
Low Neutrophils= 1,000
Extremely low= 500
Risk Factors include high risk of infection due compromised immune system.
I am going to talk to my doctor tomorrow and see if I should worry. The biggest issue is everyone at work is getting that bad flu and I do not want to end up sick again!! I also emailed a Hematologist in San Diego who is on an HCL board I have been visiting.
I also going to contact another Hematology group. If I am going to need Chemo and my WBC's are this low I want to get this over with so I can go to Florida healthy and not worry about getting sick.
Don't feel sick today, just a little run down.
Talk to you later.
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