Dealing

That is about all I can say...I am getting up in the morning going to work and trying to get through the day.

I am trying not to stress or worry but I can not help it. Not sure how to feel or what to do. I have been thinking about everything I went through last year. From all the tests to the chemo, the emergency room ,the Oncology ward and the trips everyday for an IV at the doctors office. Not a fun place to be.

It was fine the first time around and we all got through it pretty well. Yet, I really don't think I can do it again. I really don't want to put the family through it.

I am not sure how I can wait for 4 MONTHS!! before I see the doctor again and know for sure!! I guess I have to.

I am probably going to go in two weeks to the lab and get another test. Just to see what may have changed. At least I am doing something..

That's it for a Wednesday...

Treatment Options - Hairy Cell Leukemia(Review)

Hairy Cell Leukemia (HCL)
(from OncologyChannel)

In the recent past, HCL patients who were symptom-free typically did not receive any treatment for the disease. However, they did undergo routine follow-up exams every few months to monitor leukemia progression and identify any new symptoms.

Not a Good Start to the Weekend!

I had my HCL check with my Hemo today. Last visit was April 09. The results are below:

As you can see, my White Counts and My ANC took a DIVE!!! Not very encouraging. Needless to say this not the result I was looking for.

Unfortunately , my doctor now wants to see me in 4 months vs 1 year. If my counts don't rebound by February he will want to do another bone marrow biopsy.

As you know I have been yelling as loud as can about never doing another BMB. It sucked the last time. Yet here I am a year and 1/2 later staring down the barrel of large needle looming in my future! HAPPY 2010!!!

To bring things back in perspective, I am still far with in healthy limits. My risk is very low for infection and I am asymptomatic. No need to panic at all yet. My palms are just getting sweaty and the butterflies are growing in my stomach......

You know I will be Obsessing over this for the next 4 months until I get checked again. Who wouldn't!!

I am thinking the hip surgery and everything I have been through had some effect. Yet, I had a transfusion in the hospital, 2 units. I should be at the same high levels (6.0) because of that, right??

Unfortunately, only time will tell....and that's what sucks about HCL...It is slow and makes you think about it....

Have good weekend!!!

Finally Mid Week!

I am very glad it is Wednesday. It has been a long week. I have a lot going on. Cam is back to school after being sick all weekend. Theresa has been sick too. Its been a rough week for both.

I am praying I am not going to get it. The last thing I want is the flu. It wont surprise me however.
Everyone at work is hacking and coughing. People are even coming to work with a fever!!

Whatever!!

I have my HCL check up tomorrow. I will post my blood test results. It will be interesting as I have been having fatigue issues for the last month and half. I know it has something to do with my surgery but I can't help but think about my HCL. Do I have that bad of luck!!!


My left side is feeling better and better. I wish I could report the same for the right side but at least it has not gotten worse. I did walk a mile around the track before Aaron's Sunday Soccer Game. It whipped me out but I did it. I was also sore for two days. I need to do more stuff like that if I am to get better.

I get to go to Aaron's school conference tomorrow. I miss doing this stuff. I have been laid up so much I missed most of the conferences last year and this is my first one solo!

NO surprises..I know he has been working hard.

Looking forward to the weekend and more soccer games!!

Go Ducks!!!(its a bye week so a for sure win!!)

Happy Sunday

Just a short update today. I went to the Duck game yesterday. It was great.

Once again, I am paying for it today. However, its my right side not my left that is tell me I told you so. It really hurts today. I am on the couch trying to rest. I got some work done around the house this morning but I am done!

It is becoming very frustrating. If this keeps up I really don't think I can deal with it I will continue to ignore it as much as I can and try to live my life.

One week away from HCL check up. I am sure everything is fine but I am going to tell my doctor about my energy level and how I have been feeling for nearly a month now.

Talk to you later and Go Ducks!!