Update

So things Thursday went great. Enjoyed being around everyone for Thansgiving. Vets only didn't want to be alone.

Before everyone left I crassed. Very tired from the long 3 days in the hospital.

Friday I woke up feeling ok. Had some breakfast, stomach felt ok. Visited with my Parents and brothers again. Kept having nausea would really like it to go away! 

It has been great having the boys around. Wish we could do more time. 

Looking forward to seeing them over Christmas should feel great by then.,

Ate ok as well,just as long as I took my nausea meds. 

So , short and sweet most of Friday uneventful. Ran 99 degree temp in the evening but no big deal. Also having diarrhea all damn day too.

Now Saturday different story. Woke up with a raging rash all over my body and a super red face. Completely freaked me out. Theresa and I thin it was from the new antibiotic. Called the doctor and she told me to stop taking it.

Diarrhea still with me.. Oh joy!!! 

Started feeling like crap also, continuously getting worse as day drug on. Started running a temp as well. As it became evening my temp spiked to 101.7 and pretty much stayed there. Did not go back to the ER as I didn't want to and figured my fever would go away in the morining. Monitored it until

 11pm then went to bed. 

Woke this morning (Sunday) fever is gone and feeling ok. 

So stay tuned. Doctor appointment Monday and hopefully we can make some sense of all this.

Tired of being sick tired of felling crappy. Ready to get back to life...........

Happy Thanksgiving

Going home today and not tomorrow. Life doesn't get any better than this!


Finally get to see the kids!


See ya.........

Near the top of my list for Horrible Night

Except the time I fell down the stairs backwards on crutches:).... That's a whole different topic.


Any way, last night started off with my low grade fever growing slowly. With it came this irritating nausea and mild cramping .... As the night went on and temp kept rising. My cramping got worse and my nausea got worse. To the point I told the nurse to get me a bucket!

So my cramping kept increasing and fever increasing. It Got so bad she called the doctor to check me out.

The doctor could not tell by feeling stomach what was up so she ordered an X-ray and drugged me up with Delodid and liquid Tylonal.

The thought was that my spleen  might be rupshered so they changed from an xray to a emergemcy CT scan.

The nurse had to help me to the transport bed. After the scan they took me back to my room. I got in bed and since I was so druged up I crashed.

Like I said I have never been more scared in all my life.... Theresa was freaking out as we'll.

Took over a hour but the told me nothing was wrong. Thst really frustrated the crap out of me.. I guess all the anti- biotics they have been dumping in me is making stomach sick. I don't know.


The end result the next day (Tuesday) was high alert! No could enter my room without a gown gloves and mast. Plus everyone had to wash up when they left my room.

Made for an interesting morning for all the nurses. Tuesday was a much more mellow day. More on that later!!

Monday- Skip to the end

So my Sunday was interesting. After I had my Nuelasta shot temp started going up.

Through out the night I kept taking my temp and it slowing kept going up up.

By 1:00am it was 102 and I was in the ER. Bad fever, really bad cramping, nausea was awful and my stomach hurt when the doc pushed onit.

They gave me nausea mess and Delodid ( love that stuff).

Once I was stabilized the took blood for CBc and more for cultures. Surprise, not Nuetropenic! My white count was 0.

So here I am now in a room getting tons of IV antibiotics.

My blood pressure is thst of dead man so they pumping fluids right now. My fever once again going up...

Nurses coming in signing off!!!

Day 6

Yesterday was rough one.

It started with me waking up feeling like someone kicked me in the stomach. I choked down some yogurt and then took a nausea pill. Seemed to help a little.

I then laid on the couch all day....watched college football of course.

I watched the Huskers get there ass kicked, suck...Oregon beat the crap out of Colorado. Go DUCKS!!

Then I started getting a low a grade fever. Started out at 99. After about an hour it moved up to 100 and by the end of the USC game (they lost....crap) it was 101.6.

I called the night nurse at OSHU and she said if gets to 102 then come in. Fortunately, it didn't. so I took a sleep aide and when to bed.

I had a  very rough night. I woke up at 3am  and never really went  back to sleep.

I guess its good I didn't end of in the hospital last night but I think I would feel better faster if I was.

I go in Sunday to get my Nuelasta shot and a CBC. Curious to see what counts are. My temp could very well spike Sunday night as well.


On another note, no clue how Thanksgiving is going to work. I guess I will wear a mask if I am here. I certainly don't want to be a buzz kill for everyone and ruin Thanksgiving......

Lets see what Sunday Brings.....see ya.

Day 5

Well that was it!!!!                        SLOW DRIP IS HISTORY

Didn't go to work. Felt like crap when I woke up. Worked from home. I got about 4 hours of work done. I was very frustrated however. Tons of things going on and very hard to be away.

If it wasn't for certain people and you know who you are!! I would be buried and stressed out more than I already am. THANK YOU ALL VERY MUCH!!!

Theresa took me to the Infusion Lab at about 1:40. Again, I sat for half hour waiting to go back. Then I didn't start my treatment until about 3:15.I don't understand why they can't be more prompt.

Got done about 6:00. Felt sick going into my last treatment and half way through it took another nausea pill. Its getting rough and rougher. Of course, Its not surprising, in fact the worst is still to come.

My  wife's brother in law came and picked me up. Thank you very much! Trying to wear a mask when ever possible moving forward.

When I got home, didn't each much, took another pill. I had chills, headache and cramping. My damn  right hip is very sore as well. I guess the chemo is attaching the freshly healed surgical site...

Anyway, also took my anti viral med and my sleep aide. Then crashed hard. Woke up at 11:30 and had a hell of a time sleeping after that.  Toss and turned the rest of the night.

Still really unsure if I am going to end up i the hospital or not. No low grade fevers yet either unlike last time. Maybe this 5 day treatment is not as strong as the 7 day 24 hour??


Who knows. Lets see how Saturday Goes. Stay tuned..........

Day 4 (late post)

I did it again.. This is why I failed at journalism I am slow.....

Feeling crappy, left work at 10:00. Was very nauseaous. Took a pill and went home. I crashed for an hour then had my mom drive me to the Infussion lab.

They of course where super busy and it was another 5 hour day.

Felt worse on the way home, more fog and very sick to my stomach. My hip didn't hurt as bad.

I ate some dinner which was good. I now have that low grade fever feeling always hot.

By the way, My brother picked me up and drove me home which was nice.


So one more day of the slow drip then we shall see what happens next.

My wife is awesome with all her help again. Must be getting old.

I will post more tonight if I can.....

More and more tired.

See you later!

Day 3

Oops running behind.....Sorry!

Made it through work fairly well. Still felt overwhelmed but got lots of help.

Day 3 was fairly uneventful. Got in at 1:50and didn't get ifussion going till about 3:15. So after my flush I got out of here about 5:45.

Even took a call from a customer during treatment. Not ideal but it is what it is.

Traffic coming down the hill sucked. Got home a little before 7:00.

By the time I got home started feeling run down and very tired.Stared feeling like a fog washing over me. Just sat at the TV spacing out.

Took another sleep aide and of course crashed hard!!! At this time still felt ok and made my lunch for Thursday. Also, ate a great dinner.

So fairly straight forward...

Only 2 days left!!!

Day 2

So fairly uneventful today. Got there about 1:30 and they quickly ordered my chemo. Since I already had an IV in they checked it and 30 minutes later I was off and rolling.

Got done about 5:15. I also crashed for about 45 minutes while I was waiting for the IV to be hooked up.  Didn't sleep very well at all. Uncomfortable because of IV and just felt weird last night.

Getting something to help me sleep. I have like a billion different mess I can't pronounce. Kind of scary.

Theresa just came back with a treat and she is reminding me to drink WATER!!!

She is the best.

Had s an ok time at work. Kind of felt like I had the flu. Also felt overwhelmed all day. I am very busy but I have never felt overwhelmed like that.

Not really sure when I will "fall off the rails" bit I know it's coming. Doing this 5 day infussion I really have no clue how fast thecsideceffects will kick in.

Praying I can work all week but Theresa thinks I am nuts!! Maybe I am but I don't have a lot of time off left so going to push it!!!

Lastly will post a picture of my blown veins!!! My arm hurts like hell still!

See ya

Day One

hey there!!!

Here we go......feeling Ok. A bit light headed at first! Post later... Trying to this on iPad!!! I have about maybe half hour left. Took an hour to get my IV. Blew 2 veins in right arm, not suprising.  Going with left arm!!! Talk later.

Next Week Schedule

So my schedule next week goes like this; first treatment 2:10 Monday Afternoon. Then everyday after that at the same time.

Call me crazy but I am planning on working all week. I actually need to. Not much vacation days left!

Curious how I will do with a daily infusion. Not sure how I fill 2 1/2 hours every day. Lots o movies I guess.

I am going to try to track how I feel so I will have info for next time.

Sounds silly but I don't remember how I felt each day. Only remember the fever and the hospital stay.... Can't belive its already been 7 years!!!!


So strap yourself in and stay tuned!!!!!

Appointment tomorrow

So....... My labs and consult tomorrow I guess. No clue after that! Doc is unclear when I will start treatment.

Looks like its 5 day infusion vs 7  day continuous. OHSU does not do  the 7 day pump. No clue why but what ever, won't go back to previous Doc and hospital. Not looking forward to being lost in the ER again.


Expect much better experience soon. I do however feel once again like I am on an island alone... Hate that! Really don't want this.... Really hurting my family... Completely unfair. I have had my fill of crap the last 7 years to last a life time but it just keeps coming!!!!!


Well cry me a river right........ It is what is and move on!

So when I found putvwhat the is going on I will let you know!

Till then good night !!!

I am Back!!!

As the title indicates I am back posting after a very long  break.

I figured once I got through the HCL then the PAO ( x2)😄😄 I earned the right to shut this down.

Then....... It happened, my stupid white cells betrayed me and started letting those damn hairy cells back into my life.

Well here we go again! This time however, I got smart, I hope. I got a new Doc at OHSU. She is awesome.

So, it appears my counts tanked a few weeks ago. I went from 3.5 WBC to 2.88 in 3 weeks and an ANC of 2300 to 1470...

As a result, my Doc insisted I plan on treatment over Christmas!!! No F IN way!!!

So I chose to screw up Thanksgiving and get this over with.

Just as well, I can't keep my emotions in check and I  feel like I am going through menopause.. Hot & Cold every day.

Tired of worrying about getting sick when I traveling and thinking about treatment.

As I hoped,  work is stepping up again. Thank God! I owe them big time..
Anyway, enough for today.

My first appointment is Tuesday at 1:00 and then at 2:00. So stay tuned!!!

Say good night Hairy Cells!! I will be free very soon!!!!!!